I just read a great article in Science Insider discussing the recent report by the National Research Council that recommends the establishment of a massive database combining patient medical records with genomic information related to their disease.
Aside from being informative, the review by Science is actually quite helpful to the general public since the report is only available for a fee! Nonetheless, a quick google search netted me a copy of the report in brief which can be read here.
I won’t go into the details of the article, (that is for you to read), however,
after reading the article in brief, (ie the free version), I truly believe that the committee’s recommendations are correct. Due to the complexity and volume of data needing to be analyzed, an open access philosophy that allows for unfettered access to ALL data types will certainly help revolutionize our approach to personalized medicine.